top of page

Life with Long Covid, Dysautonomia, MCAS and Hypermobility

I haven't written in here in a while and I think now is the perfect time to do it. In the wake of a life-altering bout with COVID-19, the past four months have become an unexpected odyssey through the complexities of health. What began as a battle against the virus soon unraveled into a cornucopia of challenges—dysautonomia, Mast Cell Activation Syndrome (MCAS), and hypermobility issues—that have reshaped my existence. Since August, each day has been a tightrope walk between unpredictable symptoms, from the physical to the emotional.

Between the intricacies of dysautonomia, the unexpected discovery of MCAS and the added layer of hypermobility issues, some days are so draining that I wonder if I will have the strength to keep going. Needless to say, the toll on relationships and work has been profound. I can't remember the last time I have seen my friends, gone out to eat or just have a good time.

Navigating the labyrinth of symptoms and seeking understanding in the medical realm has been a relentless uphill climb. Yet, within this challenging landscape, moments of resilience emerge, offering glimmers of hope. This journey is a testament to the resilience of the human spirit, a reminder that even in the face of unforeseen adversities, there is strength to be found, and healing is a journey of both time and tenacity. As I share my story, my hope is that it resonates with those facing similar struggles, fostering a sense of camaraderie and inspiring a collective push towards awareness and support.

This too shall pass!


Recent Posts

See All

Inspiring story of strength

I honestly don't know how many people can watch this video without shedding a tear or... crying a river. When I first saw it, I was flooded by so many emotions and I thought that it would be a crime n

bottom of page